Approximately one in 50,000 people will develop MND in any one year, with over 5,000 people in the UK affected at any one time. It is an illness of adulthood, generally affecting people over the age of 50.
Motor neurone disease (MND) causes a progressive weakness of many of the muscles in the body; motor nerves become damaged and eventually stop working. Therefore, the muscles that the damaged nerves supply gradually lose their strength.
Sugarman Health and Wellbeing’s specialised carers understand that this progressive condition requires a more permanent level of support, which when provided at home preserves the chosen lifestyle of our clients. Where home adaptations are required our team liaise with the appropriate individuals including medical teams and Occupational Therapists.
As people with MND gradually lose the use of their voluntary muscles, they often need assistance with personal care, which goes beyond the obvious assistance of bathing, for example some people with MND find that as their muscles weaken they blink less often and so their eyes become dry and sore, the regular use of eye drops therefore prevents unnecessary discomfort.
Our care and support workers strive to cultivate community connections, which perpetuate social interaction, this is vital for the wellbeing of all individuals, as the emotional impact of MND can become overwhelming if social interaction is not encouraged.
Bespoke care plans are developed in conjunction with medical practitioners, which are reviewed in order to monitor the condition of MND and to ensure a well-developed intervention plan is maintained.
The main types of MND are:
– Amyotrophic lateral sclerosis (ALS)
– Progressive bulbar palsy (PBP)
– Progressive muscular atrophy (PMA)
– Primary lateral sclerosis (PLS)
Even though there has been significant research, the cause of sporadic MND is still unknown. Various causes have been suggested, including environmental factors such as pesticides, heavy metals, organic solvents and viral infection, but there is no concrete evidence.